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The National Gaucher Foundation is pleased to present the 2017 National Conference. Join us to connect with Gaucher patients and familes across Canada. Our workshops and keynote presenters will provide insightful and current Gaucher information. Please complete workshop choices for both Attendee and for your Guest.

National 2017 October 20-22 2017 Conference Agenda
Saturday, October 21st, 2017
Time Activities
2:00pm - 8:00pm Early Registration
6:00pm - 7:30pm Cocktail Reception
7:30pm - 7:45pm Video - "Cody's Story"
7:45pm - 10:00pm Cocktail Reception
Sunday, October 22nd, 2017
Time Activities
7:00am - 8:00am Registration and Continental Breakfast
8:00am - 8:05am Welcome Remarks
8:05am - 8:40am Keynote Address: Treatment Options in Canada: Past, Present & Future with Dr. Dominick Amato
8:40am - 8:55am Keynote Address: The Gaucher Story Online: PIcking souorces, protecting privacy and profting in the age of e-patients with Emma Rooney
8:55am - 9:15am Keynote Address: From Diagnosis to Treatment, a Gaucher Patient's Journey of LIfe before Treatment to Research Trials, ERT and SRT with Cynthia Frank
9:15am - 9:35am Question and Answer: Panel of Speakers
9:35am - 9:55am Refreshment Break
9:55am - 10:40am Keynote Address: The Ins and Outs of Gaucher Disease: Who knew it was so complicated? with Dr. Gregory Grabowski
10:40am = 11:15am Keynote Panel: Journey with Gaucher Disease with Carrie Ostrea, Anita Graham, Cody Kirk, Katherine White and Judy Jacobs
11:15am - 12:15pm Workshop Sessions: A1-A4
A1 - Ask the Experts - Canadian Experience (Presented in English and translated into French)
A2 - Taking Charge, Healthy Choices
A3 - Living with Gaucher Disease (Patients and Family Members Only)
A4 - Genetics 101: What do all those letters and numbers mean to me?
12:15pm - 1:15pm Buffet Lunch
1:15pm - 2:15pm Workshop Sessions: B1-B4
B1: Bone Health and Gaucher Disease (Presented in English and translated into French)
B2: Taking Charge, Healthy Choices
B3: Meditation and Yoga
B4: Caregiving: A Shared Experience
2:15pm - 2:45pm Keynote Address: Gaucher / Parkinson Link with Dr. Michael Schlossmacher
2:45pm - 3:00pm Keynote Address: A Movement Disorders Neurologist in the Gaucher Disease Clinic with Dr. Lorraine Kalia
3:00pm - 3:15pm Keynote Address: Gaucher Disease: "A Patient's Story" with Margaret Giuliani
3:15pm - 3:30pm Refreshment Break
3:30pm - 3:50pm Keynote Address: Disability and Tax Credits with John Adams
3:50pm - 4:15pm Keynote Address: History of the National Gaucher Foundation - 25 Years
4:15pm - 4:30pm Keynote Address: Global Gaucher with Kate White
4:30pm - 5:00pm Closing Ceremony

Registration is now closed.

Please contact Sherry Sim, Event Manager at
or Christine White: