| Saturday,
October 21st, 2017 |
|
Time |
Activities |
| 2:00pm - 8:00pm |
Early Registration |
| 6:00pm - 7:30pm |
Cocktail Reception |
| 7:30pm - 7:45pm |
Video - "Cody's Story" |
| 7:45pm - 10:00pm |
Cocktail Reception |
| |
|
| Sunday,
October 22nd, 2017 |
| Time |
Activities |
| 7:00am - 8:00am |
Registration and Continental Breakfast |
| 8:00am - 8:05am |
Welcome Remarks |
| 8:05am - 8:40am |
Keynote Address: Treatment Options in Canada: Past,
Present & Future with
Dr. Dominick Amato |
| 8:40am - 8:55am |
Keynote Address: The Gaucher Story Online: PIcking
souorces, protecting privacy and profting in the age of
e-patients with Emma
Rooney |
| 8:55am - 9:15am |
Keynote Address: From Diagnosis to Treatment, a
Gaucher Patient's Journey of LIfe before Treatment to
Research Trials, ERT and SRT with Cynthia Frank |
| 9:15am - 9:35am |
Question and Answer: Panel of Speakers |
| 9:35am - 9:55am |
Refreshment Break |
| 9:55am - 10:40am |
Keynote Address: The Ins and Outs of Gaucher
Disease: Who knew it was so complicated? with Dr.
Gregory Grabowski |
| 10:40am = 11:15am |
Keynote Panel: Journey with Gaucher Disease with
Carrie Ostrea, Anita Graham, Cody Kirk, Katherine White
and Judy Jacobs |
| 11:15am - 12:15pm |
Workshop Sessions: A1-A4
A1 - Ask the Experts -
Canadian Experience (Presented in English and translated
into French)
A2 - Taking Charge, Healthy Choices
A3 - Living with Gaucher Disease (Patients and Family
Members Only)
A4 - Genetics 101: What do all those
letters and numbers mean to me? |
| 12:15pm - 1:15pm |
Buffet Lunch |
| 1:15pm - 2:15pm |
Workshop Sessions: B1-B4
B1: Bone Health and
Gaucher Disease (Presented in English and translated
into French)
B2: Taking Charge, Healthy Choices
B3: Meditation and Yoga
B4: Caregiving: A Shared
Experience |
| 2:15pm - 2:45pm |
Keynote Address: Gaucher / Parkinson Link with Dr.
Michael Schlossmacher |
| 2:45pm - 3:00pm |
Keynote Address: A Movement Disorders Neurologist in
the Gaucher Disease Clinic with Dr.
Lorraine Kalia |
| 3:00pm - 3:15pm |
Keynote Address: Gaucher Disease: "A Patient's
Story" with Margaret Giuliani |
| 3:15pm - 3:30pm |
Refreshment Break |
| 3:30pm - 3:50pm |
Keynote Address: Disability and Tax Credits with
John Adams |
| 3:50pm - 4:15pm |
Keynote Address: History of the National
Gaucher Foundation - 25 Years |
| 4:15pm - 4:30pm |
Keynote Address: Global Gaucher with Kate White |
| 4:30pm - 5:00pm |
Closing Ceremony |